Useful Links

Donate

St Vincent’s Head and Neck Fund
https://www.supportstvincents.com.au/ways-to-give/donate/

Visit

St Vincent’s Private Hospital
https://www.svphs.org.au/

St Vincent’s Private Hospital Online Admissions
https://svha.eadmissions.org.au/

St Vincent’s Hospital Sydney
https://www.svhs.org.au/

Kinghorn Cancer Centre
http://tkcc.org.au/

Genesis Care
https://www.genesiscare.com/au/

Travel assistance – Isolated Patient Travel and Accommodation Assistance Scheme (IPTAAS)
http://www.iptaas.health.nsw.gov.au/home

Local accommodation
https://www.svphs.org.au/patients-visitors/visiting/accommodation-for-visitors

Aboriginal Health Unit St Vincent’s Hospital Sydney
https://www.svhs.org.au/our-services/list-of-services/aboriginal-health-unit

Head and Neck Cancer Treatment Plans and Guidelines

Tips on how to choose a head and neck cancer specialist
https://www.richardgallagher.com.au/news/choosing-the-right-head-and-neck-cancer-specialist/

What is a cancer care team – Cancer Institute NSW
https://www.cancer.nsw.gov.au/how-we-help/diagnosis-and-treatment/cancer-treatment-and-care/multidisciplinary-team-treatment

Get to know your multidisciplinary (MDT) Team – Cancer Institute NSW
https://www.cancer.nsw.gov.au/understanding-cancer/cancer-care-tips/cancer-care-team

List of NSW specialist centres for complex head and neck cancer surgery – Cancer Institute NSW
https://www.cancer.nsw.gov.au/how-we-help/quality-improvement/optimising-cancer-care/complex-head-and-neck-cancer-surgery-specialist-ce

Find cancer specialists and services NSW and ACT – Canrefer
https://www.canrefer.org.au/

How NSW hospitals perform – Cancer Control in NSW Statewide Report 2018 Cancer Institute NSW (PDF)
https://www.cancer.nsw.gov.au/getattachment/cancer-control/Cancer-Control-in-NSW-Statewide-report-2018-FINAL-30MAY-Compressed.pdf

Patient Education Sheets – Beyond Five
https://www.beyondfive.org.au/

Information about head and neck cancer – Cancer Council NSW
https://www.cancercouncil.com.au/head-and-neck-cancer/

Optimal care pathway for people with head and neck cancer – Australian guidelines PDF
https://www.cancer.org.au/content/ocp/health/optimal-care-pathway-for-people-with-head-and-neck-cancers-june-2016.pdf

Oral Cancers Guideline (USA) by National Comprehensive Cancer Network (NCCN)
https://www.nccn.org/patients/guidelines/hn-oral/index.html

Head and neck cancer data – Australian Institute of Health and Welfare (AIHW)
https://www.aihw.gov.au/getmedia/bdccebf2-dbe6-44e2-9104-8461d7e7c165/16933.pdf.aspx?inline=true

Transoral Robotic Surgery (TORS)

A guide for general practitioners and patients (RACGP)
https://www.racgp.org.au/afp/2017/januaryfebruary/trans-oral-robotic-surgery-in-oropharyngeal-carcinoma-%E2%80%93-a-guide-for-general-practitioners-and-patients/

TORS explained – Mayo Clinic
https://www.mayoclinic.org/tests-procedures/transoral-robotic-surgery/about/pac-20384803

TORS FAQs (video)- Johns Hopkins Medicine
https://www.youtube.com/watch?v=_kZq8fM5hc0

Understand TORS surgery – Intuitive da Vinci robot for Head and Neck Patients
https://www.davincisurgery.com/procedures/head-and-neck-surgery

Find a da Vinci Surgeon
https://www.davincisurgeonlocator.com/surgeonlocator.htm;jsessionid=BF8D717EAD84E5439731FF4FBD395F66?spec=Other

Radiotherapy

Radiotherapy for head and neck cancers – Targeting Cancer
https://www.targetingcancer.com.au/

Using LEGO bricks to help explain radiotherapy to patients – Linear Accelerator (Linac) LEGO Model –
http://connorsbricks.com/model-linac/

Chemotherapy

Chemotherapy for head and neck cancer – Cancer Council NSW
https://www.cancercouncil.com.au/head-and-neck-cancer/treatment/chemotherapy/

Immunotherapy

Immunotherapy for head and neck cancers – Cancer Council NSW
https://www.cancercouncil.com.au/head-and-neck-cancer/treatment/immunotherapy/

Genomics

The Australian Genomic Cancer Medicine Program
https://www.garvan.org.au/research/genomic-cancer-medicine-program

The Garvan Institute of Medical Research
https://www.garvan.org.au/research/genomics/

Australian Cancer Trials

Search for active Australian Cancer Trials
http://www.australiancancertrials.gov.au/

Human Papillomavirus (HPV) Related Cancers

Incidence rates of HPV related oropharyngeal cancer is overtaking cervical cancer
https://www.richardgallagher.com.au/news/hpv-doesnt-just-cause-cervical-cancer-askabouthpv/

What men should know about cancer that spreads through oral sex – Washington Post 02.04.2017
https://www.washingtonpost.com/national/health-science/the-scary-reason-doctors-say-kids-need-hpv-vaccinations/2017/03/31/cd764b10-0e46-11e7-9d5a-a83e627dc120_story.html

Throat and tongue cancers and HPV – Sydney Morning Herald 13.10.2015
https://www.smh.com.au/healthcare/throat-and-tongue-cancers-linked-to-sexually-transmitted-virus-on-the-rise-20151013-gk80xp.html

HPV Australia – Australian Government Department of Health
https://www.health.gov.au/health-topics/hpv-human-papillomavirus

Ask about HPV – international awareness campaign
https://www.askabouthpv.org/

No Man Is An Island – Race to end HPV
https://www.nomancampaign.org/

HPV Vaccination

Patients – HPV Vaccination information
https://www.health.gov.au/health-topics/immunisation/immunisation-services/human-papillomavirus-hpv-immunisation

General Practitioners – Government Department of Health
https://immunisationhandbook.health.gov.au/vaccine-preventable-diseases/human-papillomavirus-hpv

Human papillomavirus vaccination update: Nonavalent vaccine and the two-dose schedule, Australian Journal of General Practice, July 2018
https://www1.racgp.org.au/ajgp/2018/july/human-papillomavirus-vaccination-update

Patients aged under 45 years considering vaccination
https://www.washingtonpost.com/health/2019/06/26/new-hpv-vaccine-recommendation-people-through-age/

National HPV Vaccination Register (Australia)
http://www.hpvregister.org.au/

Personal stories

Head and Neck Cancer Patient, Carer and Team Forum 2020 “Living Well Before, During and After Treatment” Friday 12 June 2020
https://headneckcancerforum.com/

Julie McCrossin AM
https://www.juliemccrossin.com/

Head and Neck Cancer Patient & Family Facebook Group
https://www.facebook.com/headandneckcanceraustralia/

The Swallows Head & Neck Cancer Patient, Carer & Family Book 2018 (Australian Edition)
https://www.yumpu.com/xx/document/view/61073992/the-swallows-a5-68-page-booklet-2018-aust-edition-outlined-300dpi-no-trim

Beyond Five – Personal Stories
https://www.beyondfive.org.au/Life-after-cancer/Personal-stories

Laryngectomee Support Group NSW
https://www.stilltalking.org/

Reflections on a life lived in the shadow of throat cancer – essay by Robert Manne
https://www.themonthly.com.au/issue/2018/march/1519822800/robert-manne/borrowed-time

An exploration of voice and identity – radio portrait of Robert Manne
https://www.abc.net.au/radionational/programs/earshot/robert-mannes-voice/10317416

Managing side effects of treatment

Cancer Council NSW
https://www.cancercouncil.com.au/head-and-neck-cancer/after-cancer-treatment/

For Practitioners

Human papillomavirus vaccination update: Nonavalent vaccine and the two-dose schedule, Australian Journal of General Practice, July 2018
https://www1.racgp.org.au/ajgp/2018/july/human-papillomavirus-vaccination-update

Childhood trauma is predictive for clinical staging, alcohol consumption, and emotional symptoms in patients with head and neck cancer, Cancer, 2018
https://onlinelibrary.wiley.com/doi/full/10.1002/cncr.31597

Guide for GPs on screening, diagnosing, and working up patients with HPV related oropharyngeal cancer
https://www.richardgallagher.com.au/?s=what+gps+need+to+know

Members of my treatment team

Dr Brett Leavers – Otolaryngology, Head and Neck Surgeon
www.brettleavers.com.au

Therese Dodds, Speech Pathologist
https://www.easternsuburbs-speechpathology.com.au/

Orsi Kokai, specialist physiotherapist
https://oncologyrecovery.com.au/

Professional Societies

Australian and New Zealand Head and Neck Cancer Society
https://anzhncs.org/

Otorhinolaryngology Head and Neck Nurses Group
https://www.ohnng.com.au/

Cancer Nurses Society of Australia
https://www.ohnng.com.au/

Australian College of Nurse Practitioners
https://www.acnp.org.au/

Speech Pathology Australia
https://www.speechpathologyaustralia.org.au/

International Federation of Otorhinolaryngology Societies
https://www.ifosworld.org/


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